Sunday, February 9, 2020

Day 9 - 50/50

Today was another day of watching and waiting.  The doctors rotate out over the weekend, so Jude now has a new CVICU doctor and will have new cardiologists and neonatologists starting tomorrow.  Dr. Rocky will be his Critical Care Cardiologist this week and he told us that he gives Jude 50/50 odds with having enough pulmonary blood flow once his PDA closes.  Which we will take!  Based on reactions at the end of last week, we really have been preparing for him to have surgery.  So this news today has provided some hope for us!

The boys came for one last visit this morning before returning to Louisiana.

You can see my new necklace in the photos above ❤️

My mom also came up one last time to snuggle with Jude.

After eating Jude woke up to give us his serious face.  He has such a look about him when he studies you.  He's so old-man or wise looking and it's precious to me.  Oh, and it looks like he is going to have a dimple on his right cheek, just like Josiah ❤️

After seeing the boys off, the three of us took an afternoon nap.  I was able to get a photo of my two guys resting together. 😊

The boys stopped for Dairy Queen on the way home and I got some cute photos:

Hopefully they will be returning again next weekend, so we look forward to seeing them again soon!

For dinner, we chose to walk to one of the other TCH buildings to eat at McDonald's.  On the way we passed their train display - so cute!

After dinner, we bathed and changed Jude for nighttime.  I found him some little outfits from the store in the hospital that work with all of his wires.  The one today says miracle all over it, which he definitely is to us!  He also was weighed and is now at 7lbs, 4 oz - so almost back up to birth weight (we have 2 weeks to get there).  CHD babies tend to burn calories faster than regular babies, so it's important to make sure he's getting enough calories to grow.

He fed one more time, then went to sleep.  We've been returning at night to the apartment, to be able to be well-rested for a full day of care.  Spending 24/7 in the CVICU will take a toll on you mentally, emotionally and physically.  We basically come home to do laundry and sleep, then head back the next morning after waking and breakfast, spending as much time as possible tending to Jude.

Good night everyone!

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